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Showing posts from June, 2018

Transplant Evaluation, Continued

What an amazing 3 days! The people we have met are phenomenal. Their passion for their patients is evident in everything they do. No matter the department, they worked together as a team. Here are some highlights! Getting to pray with my Transplant Surgeon is definitely the top of my list. Dr David Hall sat down with us and explained everything from start to finish. He did it with lots of love and gentleness and absolute care. He answered our questions completely and then jokingly asked me if I wanted a job with the center. He said it with a grin on his face and encouragement to keep learning. What a God send he is! Floyd my social worker’s sense of humor and his caring put us at ease and opened up the floor for any and all questions. When he asked about our spiritual support from our faith. As we told him about our personal walk of faith, his exclamation of “that’s why there is so much peace that surrounds you!” What an encouragement.  The wonderful Pulmonary Technician who bra

Transplant Evaluation Day One

Today was Day One of Transplant Evaluation. I am exhausted. I’ll get around to telling you about that in just a minute. I’ve had a lot of people ask me if I’m already on the transplant list. So I want to clarify some things. Right now I’m not. Going through the transplant evaluation is the first official step for getting put on the List. First, I am being seen by a Hepatologist who is a transplant doctor. I was referred to the program by my old gastrointestinal doctor back in November of 2017. I am seen in the medical clinic at his medical offices. With cirrhosis and all the changes that can occur quickly, it’s better to be seen by someone who specializes in the liver. Even though I qualified as a patient to be seen, I wasn’t qualified to be on the transplant list.  In order to be on the list I have to “score” from 15 points on. This is called a MELD and you will see me talk a lot about it in the future. My score has been 8 for a while so I have been too well for the liver tran